Not so long ago I conducted a piece of research to explore and investigate supervisors’ and managers’ experiences of supervision in the workplace in Not-for-Profit organisations. According to Share and McElwee, p163 (2005), professional supervision is a partnership process of ongoing reflection and feedback between a named supervisor and supervisee to ensure and enhance effective practice.
At a social occasion some time ago a very upper-class lady, obviously of the better sort, rounded on my wife and exclaimed “are you a complainer?”. That incident has become part of family lore, but it’s a good question if you have a dependant or you yourself are at the receiving end of care services.
Our story begins in June 2012. At the time, I was 25 years old and my brother John was 22 years old. We lost our mother three years previously and now we had just lost our father. Our father’s death was sudden and we were completely unprepared. My brother John has an intellectual disability and had been living in the family home with my father as his carer.
People with Intellectual disabilities are not supported or encouraged to register to vote, or to vote, in Ireland by government or their agencies, who can set up and organise, advertise and have training workshops around the country. This could be done with the help and support of disability advocacy organisations.
It has been Government policy for the last fifteen years, and a legal requirement for the last ten years, that mainstream public services would be planned and delivered to include people with disabilities....
Muscular Dystrophy Ireland (MDI) is a voluntary organisation that provides information and support to people in Ireland with muscular dystrophy and allied neuromuscular conditions, and their families, through a range of support services.
In December last I watched RTE’s Primetime Investigates on Áras Attracta, Bungalow 3. Knowing in advance that the footage would be bad, I debated with myself whether I should make myself watch it or not. The main reason for my unease is that my seventeen year old sister Cliona has profound ID as well as an extreme epilepsy syndrome that no seizure drug has ever been able to influence.
A features writer for 16 years, Kate Butler has written for a number of Irish titles, but mostly for the Sunday Times. She is also a practising barrister and board member of Inclusion Ireland.
People with disabilities should be given the opportunity to live as full a life as possible and to live with their families, and as part of their communities, for as long as possible. Every person who uses our disability services and our services for older people, is entitled to expect and receive supports of the highest standard and to live in an atmosphere of safety and care.
Like many parents from the intellectual disability area, I welcomed the coming of HIQA. I thought it would provide useful oversight of services, safeguard people’s rights and provide an independent arbiter for complaints. What I didn’t foresee was another blanket of bureaucracy...