Tuesday, November 21, 2017

Down Syndrome

CITIZEN JOHN

My name is John Feighery. I am 24 years old, I have special needs. I was born with Down’s Syndrome but that has not stopped me from growing into an active member of my community.

Eithne Clarke (1923 – 2011) & Declan Costello (1923 – 2011)

Eithne Clarke (1923 – 2011) Intellectual disability was not an easily understood, or comfortably discussed, subject in 1955, when Eithne Clarke’s third child, Mary, was born with Down Syndrome. Eithne searched for advice, even reading Angel unaware, a book published in 1950 by Dale Evans Rogers (wife of the cowboy singer-star Roy Rogers). While Mary was still a baby, Eithne...

The story of Julia

Let’s start with just before Julia was born—the reason being that a funny thing happened to me about 4 weeks beforehand. Julia’s father, Timmy, and I were in town doing some last-minute Christmas shopping. We were in Arnotts and, being 8 months pregnant, I was leaning against a railing by the escalator while Timmy browsed through some clothes. I was...

Supporting communication in a child with Down Syndrome using augmentative and alternative communication

Introduction There can be little doubt that the use of effective communication has major implications on how individuals can exercise choice and control over their lives, gain independence and social inclusion leading to real improvements in quality of life (Thurman et al. 2003). The core meaning of the word communicate is ‘to place in common’, and language is said to...

Taking steps towards inclusion: Assessing the attitudes of schoolchildren toward their peers with Down Syndrome

Introduction The social relationships of a child with Down Syndrome or other Special Educational Needs (SEN) often constitute the single area of school life about which parents and carers are most concerned (Cuckle and Wilson 2002). Therefore, it is perhaps not surprising that exposure to peers and opportunities for friendships in the local community are frequently the main reasons why...

MENTAL HEALTH AND BEHAVIOURAL CHARACTERISTICS OF DEMENTIA IN PEOPLE WITH DOWN SYNDROME

People with Down Syndrome are now living longer and healthier lives. This in part is attributable to better health care and nutrition in infancy and childhood. The average life expectancy has increased dramatically over the last 60 years with many people living into their fifties and sixties. As in the general population, increased life expectancy brings with it, the...

DOWN SYNDROME AND ALZHEIMER DEMENTIA: Some common medical Issues and implications for palliative and end-of-life care

The presence of symptoms of dementia in persons with Down Syndrome and with intellectual disabilities of other aetiologies poses challenges for physicians, nurses and other staff. The following observations reflect the growing literature on the health consequences of dementia, as well as the author’s own clinical experiences in working with people with Down Syndrome and dementia and participating in...

FOYLE DOWN’S SYNDROME TRUST

Foyle Down's Syndrome Trust (FDST) was formed in September 1995. The Trust has an innovative and groundbreaking approach to the educational and social inclusion of children and young people with Down's Syndrome who are disadvantaged through the disabling attitudes in society. The specific objectives of the Trust are: to support children with Down's Syndrome and their parents and families by providing...

SCIENTIFIC MEETING ON THE MEDICAL MANAGEMENT OF CHILDREN AND ADOLESCENTS WITH DOWN SYNDROME IN IRELAND

Tallaght Hospital, 15 June 2001 This Scientific Meeting presented the results of the first major Irish and international research project performed on children and adolescents with Down Syndrome (DS) by Ms Joan Murphy, Dr Magued Philip and Professor Hilary Hoey of the TCD Department of Paediatrics at The National Children’s Hospital. Following the research we produced the Guidelines on the...

JULIEN

My son Julien, who has Down Syndrome, will be eighteen in July. He is the eldest of three children. We live in Alès (pop. 50,000), about 70km from Montpellier. Julien is tall, slim and muscular. His appearance is very important to him and he spends a lot of time lifting weights and doing press-ups. This wasn’t always the case....