Tuesday, November 21, 2017

Epilepsy

‘Decongregated Settings’ – Hailed as progress, but seems to forget those with complex medical needs

Jeanette and Cliona
In December last I watched RTE’s Primetime Investigates on Áras Attracta, Bungalow 3. Knowing in advance that the footage would be bad, I debated with myself whether I should make myself watch it or not. The main reason for my unease is that my seventeen year old sister Cliona has profound ID as well as an extreme epilepsy syndrome that no seizure drug has ever been able to influence.