Monday, December 11, 2017

Families

Provision of Autism Services Leaving Much To Be Desired

My daughter Francesca has autism and graduated from St Paul’s Special School in June of this year. In 2013, I had contacted our local Disability Manager. She told me that the school and the family would have to identify a service that best suited her needs....

Ramblin’ Man (taking the Scenic Route…)

John Byrne Train
How many holidays have you gone on? I’ve lost count, I tend to remember the big ones. Do you travel by yourself or do you go with other people? I go mostly on my own, like if I go around Europe I'd tend to go on my own. Where is the most exotic place you’ve visited?......

Fully accessible facilities at MDI’s ‘Home from Home’

Accessible facilities 1
Muscular Dystrophy Ireland (MDI) is a voluntary organisation that provides information and support to people in Ireland with muscular dystrophy and allied neuromuscular conditions, and their families, through a range of support services.

Inspiration, motivation and success

Mei-Lin-Yap
My ambition is to become a champion in swimming. I haven’t competed in a few years now so I am just coming back to the swimming again. This ambition is the motivation that I need to keep me driven to achieve this goal; I know this is a really big goal, but I am prepared to put in the hard work to achieve it.

Failure To Help: An Indictment of Special Needs Education and Training

My experience relates to my daughter Shannon- Shannon has Down Syndrome and her experience highlights the difficulties children with special needs have in getting the opportunity to develop and contribute to society.

Modern Capacity Legislation

For those who have campaigned for modern capacity law through the years, there was an important milestone recently. The Assisted Decision-Making (Capacity) Bill 2013 progressed through select committee stage – which is the third stage in a five-stage process of making law. Stages 4 and 5, called report and final stage respectively, are normally seen as procedural and there is genuine optimism that the end of the road is in sight.

Mei Lin Yap

My motivation in life is the desire to succeed -the urge to reach my full potential... these are the keys that will unlock the door to personal excellence. I found out I have Down Syndrome when I was in my teens, up to then although I knew people who have Intellectual disabilities it never occurred to me that I have one too.

Housing Stories

I feel like I would be better off outside of the area. I don’t feel safe in the area because there are some dangerous people there. There were threats being made, and the guards investigated and they asked if there were more threats afterwards. Two weeks later there were more threats made towards me. I said to the social worker “if you can get me out of the area I would be prepared to move anywhere”.

SQUEEZED BY Giants: HIQA AND THE HSE

Like many parents from the intellectual disability area, I welcomed the coming of HIQA. I thought it would provide useful oversight of services, safeguard people’s rights and provide an independent arbiter for complaints. What I didn’t foresee was another blanket of bureaucracy...

Something meaningful to do every day should be a right enshrined in law

Youth unemployment in Ireland is currently over 22 percent, and Irish parents are heartbroken watching their young adult sons and daughters emigrate to far away shores for work as there is nothing here for them. As difficult as this is, these young people are, in my opinion, lucky as they are able to emigrate and find a meaningful occupation elsewhere...