Monday, December 11, 2017

Frontline Issue 43

R&R?

It seems that respite care is throwing off its Cinderella rags at last and becoming a real service; there’s a lot more money around for it. One of the first signs of change is dissatisfaction with the name--a bit medical, a bit utilitarian--so if you can think of a rosier name for respite you may be in business! Whatever its...

Book Review: YES YOU CAN!

Dr Mark Nagler is professor of sociology at Renison College, University of Waterloo. He was born in Calgary in 1939, with cerebral palsy. His parents resisted the professional advice, not surprising at that time, to have their son institutionalised, and their ongoing advocacy gained him a place in a mainstream school, and higher education. Nagler’s personal and professional experience...

Review: FACE TO FACE

Face to face is a 52-minute video tape with an accompanying 24-page booklet giving detailed information on the stages of dementia and appropriate supports for individuals with learning disabilities and dementia. The tape was filmed in group homes for elderly persons with learning disabilities in Belgium, The Netherlands and Luxembourg; the text is in the local language, with English...

Book Review: CARING FOR KATHLEEN

Among her personal belongings, Kathleen Fray left a box labelled 'Private: Keep Out'. Inside, she had written the name of a hospital near her childhood home where she would have liked to stay once she could no longer live comfortably in the care of her sister, Peggy. But this was not to be: Kathleen died in Grange Hall nursing...

PRENATAL DIAGNOSIS OF DOWN SYNDROME: MOTHERS’ REFLECTIONS ON SUPPORTS NEEDED FROM DIAGNOSIS TO BIRTH

Abstract A qualitative study involving ten mothers who received a prenatal diagnosis of Down Syndrome and chose to continue their pregnancy was presented. The time frame considered was diagnosis to delivery. We looked at how the diagnosis was presented, the decision to continue the pregnancy, and the mothers’ experience with professionals from diagnosis to delivery. Mothers’ suggestions to others facing...

POEM: Others say ‘How badly off you are.’

Others say 'How badly off you are.' I brought you home full of joy How perfect you looked, all four pounds of you You could not see; what a heartache. Then hope as you turned your head. Light had entered your eyes after what seemed an eternity. Others say 'How badly off you are.' You did not talk, stand or smile. I could not understand!! When that first...

EXPERIENCING SPECIAL NEEDS IN MAINSTREAM PRIMARY SCHOOLS: A PARENTS’ PERSPECTIVE

Helen Keller is quoted by Gash and Coffey (1995) as saying that 'The heaviest burdens of disability arise from personal interaction and not from the impairment itself'. Children with disabilities are also open to prejudices which can have a profound effect on their social, cognitive and emotional development, and on their self-image. These prejudices may be displayed during the...

MUSIC THERAPY: AN OLD ART, A NEW PRACTICE

Music therapy is a professional discipline practised in over 40 countries of the world. Music therapists are trained and qualified professionals and, in most countries, professional bodies are responsible for recognising and accrediting the university qualifications received by music therapy graduates. The music therapist uses improvised music, made up along with the client, and also songs, music listening and song...

JENNIE KILLEN (1947-1999)

In Memoriam From the time her daughter Caroline was born, until she lost her brave fight against cancer in September of last year, Jennie Killen was at the forefront in the fight for services for people with mental handicap. She held positions of Chairman, Secretary, NAMHI delegate and newsletter editor in the Family and Friends' Association of Cheeverstown House. Before...

BORDERLINE AGM

21 May 2000, Dublin Borderline was founded in 1997 to offer support for carers and families of persons with mild intellectual disabilities/mental handicap. Following a radio interview with Marie Murray on the Pat Kenny Show, two well-attended open-forum meetings were held, and a national committee was formed. This year's Borderline AGM held at the Red Cow Moran's Hotel on 21 May...