Friday, November 24, 2017

Frontline Issue 67

Nothing About Us Without Us

On 20–21 June 2006 the first-ever cross-border self advocacy conference took place at the University of Ulster, Jordanstown, near Belfast. The Conference concluded the Special Olympics National Games which were held in Belfast for the first time. The conference was organised by representatives from all over Ireland, including the Brothers of Charity (Clare), UCD Centre for Disabilities Studies, Compass Advocacy,...

CREATIVE CONVERSATIONS

Creative Conversations consists of a video and a booklet. The video shows four separate sessions of carers being guided by Phoebe Caldwell to use interactive conversation with four adults who have multiple and profound disabilities. These sessions are interspersed with explanatory discussions between Phoebe Caldwall and Pene Stevens. A ten-page booklet is also included, giving a short outline of each...

HOMESPUN REMEDIES

Homespun remedies is a book aimed at parents and carers of children with Autism Spectrum Disorders (ASDs). It offers sensible and practical strategies for helping children with ASDs to function more effectively at home and in the community. The Introduction states very clearly and precisely what ASDs are and why it is difficult raising a child with an autism spectrum...

Testicular Cancer and Intellectual Disabilities: the facts

Cancer of the testicle is rare. However, it is the most common form of cancer in young men under the age of 39. It is almost always curable, if found early. Cancer can start as a small lump and then grow, moving to other parts of the body. The disease responds well to treatment even if the cancer has...

Perspective of a Special Needs Assistant

I work as a special needs assistant (SNA) in a school for children and young adults in Galway. There are approximately forty students enrolled in the school, all of whom present with severe and profound learning disabilities. Some of the students also experience severe physical disabilities, while others have a diagnosis of autism and/or exhibit challenging behaviour. The school...

poetry

The Weirdness of Dead Infantas There is a shrouded space beside me that people leave free; not wanting to intrude or get too close; grief’s easier in Emily Dickinson, short lines and distance. This space is wheelchair shaped and I keep checking it in case your ghost is hungry. Another mouthful? No resistance, When spoon meets empty air. As always you’re silent as the grave, though now and...

Emancipatory Research — No Longer About Us Without Us

What is No Longer Research About Us Without Us? No Longer Research About Us Without Us is a two year project which seeks to: provide opportunities for people with learning difficulties to learn how to do research, work with people with learning difficulties and organisations with which they are involved on research projects Investigate the usefulness of an inclusive research paradigm with people...

Foetal Alcohol Spectrum Disorders

The following consensus statement on terminology reflecting the range and degree of effects arising from prenatal exposure to alcohol was issued in April 2004 by a group of international experts at the summit convened in the US by the National Organisation on Fetal Alcohol Syndrome (NOFAS): Fetal Alcohol Spectrum Disorders (FASD) is an umbrella term describing the range of...

The Effect of Foetal Alcohol

Ireland has highest level of binge drinking in the EU. A binge is considered to be any time an individual consumes more than four drinks in a single evening. In Ireland for many young women of child bearing age this would be just the beginning of a good night out. Fetal Alcohol Spectrum Disorders (FASD) is an umbrella term...

Leadership, Alliances and Change

Change and individual action It is difficult to accomplish change simply on the basis of one person’s efforts. This is because change is a profoundly collective process in which the shared conditions of existence are altered, even if not all people experience these changes in the same way. Life in the year 2000 is clearly different in an overall sense...