Friday, November 24, 2017

Frontline Issue 69

FROM ISOLATION TO INTIMACY

This book looks at how people without disabilities communicate with those who have intellectual disability or are on the autistic spectrum. The book is divided into two sections, the first of which is entitled ‘Learning the skills of interaction’. This section examines what goes on as we interact with people who mostly do not use language and who view...

DIFFERENT DADS

As a father of a 12-year-old son with Down Syndrome, I agreed to read this book with a sense of unease, wondering what feelings might emerge that had lain buried for so long. Initially I wondered how it would apply to me? But I continued to read it to explore if it would be useful to other fathers in...

A typology of needs-led quality of life for persons with intellectual disability

Introduction Until the decade of the nineties, service provision for people with intellectual disabilities was directed through the normalisation philosophy. This centred on how people with disabilities should be cared for and, in particular, what types of services should be provided for them. While the normalisation philosophy has fashioned the type of services made available to clients, it is seen...

Some reasons why becoming person-centred should be proving difficult

In what is seen as an ongoing effort to improve ‘quality’ and reflect a more modern approach to service provision, many of us in services are striving to become person-centred. The way this concept has been interpreted and applied seems to be variable or selective but few services fail to make reference to it in their mission and value...

Camphill: an anachronism in modern Ireland?

Camphill has recently celebrated its fiftieth birthday in Ireland. The first community, Glencraig, was established just outside Belfast in 1955. In the Republic, Camphill arrived to the Wexford coast at Duffcarrig, near Courtown, in 1976. Altogether, North and South, there are now seventeen communities of all shapes and sizes. Each has a distinct character, determined by the particular needs...

The management of menopause for women with intellectual disabilities

Introduction Cosgrave et al.(1999) have established that women with an intellectual disability experience menopause at an earlier age than women of the general population. It has been noted by McCarthy and Millard (2003a) that there is inadequate information and support available for women with an intellectual disability as they experience the onset of menopause. This is of particular concern when...

Fragile X Syndrome: a complex multigenerational condition

Introduction Fragile X syndrome is the most common identified inherited form of learning disability (Greco et al. 2002) and it has been identified in every racial/ethnic group that has been studied (Sherman 2002). The vast majority of males affected with Fragile X syndrome have a learning disability (Bennetto and Pennington 2002). For females affected by Fragile X syndrome, 50-70% will...

General health issues of people with intellectual disabilites

Pretty much wherever you look in the world a similar pattern is seen: people with an intellectual disability have more health problems, a high level of serious conditions such as epilepsy and certain specific patterns of health needs associated with the cause of their disability. This pattern, easily recognisable by families and carers alike, is sadly complemented by an...

Health Matters!

Health is sometimes taken for granted. It’s not until we become ill or don’t feel quite right that we focus on what is wrong with our health. Fortunately there is a great deal that we can do. We are in a position to improve our health and we usually don’t have to rely on others to do so. We may...

Critique of ‘Organisational and systems investments that can stimulate beneficial innovations’, by Michael J. Kendrick

Historically, in Ireland within the field of intellectual disability, volunteers, a great many of whom were members of religious congregations, provided a first basic level of service and advocacy for parents and their family members with disability, seeking to remove stigma and advocate for resources. The growth of the Parents and Friends movement in the late 1950s, and particularly...