Monday, December 11, 2017

Frontline Issue 88

THE STAR BOOK CLUB

There are many challenges at present to be faced working in health care in Ireland, in particular the barriers that both staff and service users face with current cutbacks and limited resource provisions. In the face of these challenges it is important to be creative and innovative in order to provide services that best meet the needs of those...

DEVELOPING SUPPORT FOR INTELLECTUAL DISABILITY PRACTICE: Nursing Network In Disabilities Ireland (NNIDI)

In the 1980s,  nurse tutors working in what were known at the time as schools of nursing attached to eight services, formed the ‘Nurse Teachers Group’. However, given the development in nurse education and training and the move to third-level education in 2002, the group needed to consider its future. In 2007 it was decided that the group should...

FUN WITH FOOD

Many children with autism have behavioural issues relating to food, diet and healthy eating. These include: —Self-restricted diet —Avoidance of unfamiliar foods —Food preference according to visual appearance (colour, shape) —Difficulty with sensory processing (avoidance of particular tastes/textures) —Difficulty with oral motor control Particular eating patterns —fear of contamination (foods touching on plate) —crumbling food before putting in mouth —hand/ fingers in mouth while —chewing —overfilling mouth. With these considerations in mind,...

THE PROBLEM OF CHRONIC PAIN IN PEOPLE WITH AN INTELLECTUAL DISABILITY

Everyone experiences pain at some time or another—a headache, a sore back or a sprained muscle are normal experiences—but in most cases, the pain settles and disappears in hours or days, or occasionally after a few weeks. However, some people experience pain that is always present. Chronic pain is defined as pain that lasts for at least three months...

Lost opportunities for people with intellectual disability in institutional care settings

A recent study, ‘A case study analysis of Person-centred planning for people with intellectual disabilities following their transfer from institutional care’, examined the lives of ten individuals with intellectual disability who were removed from their families, taken into institutional care and later transferred to live in houses in the community. The research considered the perspective from three sources: the...

A NATIONAL PROGRAMME OF CHANGE IN CHILDREN’S DISABILITY SERVICES

If your child has a disability, being able to get services and supports shouldn’t depend on where you live or the nature of your child’s needs. Disability services for children have a long history in Ireland and many organisations provide excellent support for children and their families. They have a high level of expertise and family-centred interdisciplinary teams, with...

PROMISING THERAPEUTIC AVENUES FOR ANGELMAN SYNDROME

Angelman Syndrome is a rare genetic condition that bears the name of the British paediatrician who described three children who presented with characteristic features in the 1960s. Affected individuals show developmental delay, intellectual disability, have (practically) no spoken words and an exuberant, contagiously happy temperament, smiling nearly all the time and laughing a lot, tending to stick out their...

STAFF COPING AND BURNOUT IN INTELLECTUAL DISABILITY SERVICES

The main features of burnout are an overwhelming exhaustion, feelings of cynicism, frustration, anger, failure and ineffectiveness. Burnout negatively affects both personal and social functioning. It is associated with absenteeism, intention to leave the job and actual employee turnover- Burnout results in reduced employee satisfaction and reduced quality of care for service users. Rose, Jones, and Fletcher (1998) reported...

PERSON-CENTRED ACTIVE SUPPORT IN IRELAND

Person-centred active support is the key to increasing engagement in meaningful activities and relationships which, is itself, is key to achieving a good quality of liflife. It is very difficult to grow in independence and experience social inclusion or choice and control if you never a range of experiences. In person-centred active support, staff: — See every moment as potential—every...

INFLUENCING SERVICE IMPROVEMENT AND CHANGE THROUGH EDUCATION

People with intellectual disability are beginning to find opportunities opening up in post-secondary and third-level education. Some institutions have been offering courses for a number of years, with specifically designed programmes being the most common. More recently more mainstream options are being developed which encourage all students to study together with awards achieved at different levels. A module is a...