Tuesday, November 21, 2017

Frontline Issue 93

Reflections

Stephen Kealy recently interviewed two women who, with their husbands, have raised children with mild intellectual disabilities. Both the ‘children’ are now adults, in their thirties. The man lives independently, near his parents’ home; the woman continues to live with her parents. Both have held part-time jobs for several years, and they receive back-up support from intellectual disability services—one provides a day service and the other provides independent living support and a job coach.

Winnie and Mel Donlon

Earlier this year Winnie celebrated 50 years of a very full life. Next year, St Christopher’s, a service with a long association with Winnie’s parents and Winnie herself, will be celebrating 50 years of provision to families and their children with an intellectual disability. Winnie’s story and that of St Christopher’s go hand in hand, as Mel, her father, has been an integral part of the organisation since its foundation. 2014 will see five decades of Mel’s continuous involvement...

THE FIVE-YEAR PLAN

A few weeks ago a group of friends were out and somebody mentioned the 5-year plan. It brought back memories of a few years ago. During my days in nursing when we were newly trained graduates, we all had a five -year plan. Our aims included getting experience in our relevant fields, getting some finance together, travelling the world and, if we met a significant other in that time, that was all the better. Life went on and we went our separate ways, but we still stayed in contact...

FAMILIES

Stephen Kealy
This issue of Frontline looks at some of the issues that families live with in providing for their disabled son or daughter over the life span. Parents very often talk about hearing the news of their child’s disability and they describe it in many different ways. Others identify how disability has changed their lives and permeates their day-to-day living; they talk about the ongoing struggles for services, and even the right to be heard. For many parents, this is a journey into a labyrinth—with many false starts and cul de sacs. The journey to the centre of the labyrinth can be lonely and anxiety provoking. When that centre is reached, many parents hope their son or daughter will have honed their hard won skills to be able to live ‘independent lives’, but they are often frustrated by the unreliability of state and community supports to facilitate that continuing journey for their family member...

SIBLINGS: LONG-LASTING TIES

Siblings of adults with intellectual disabilities (ID) are an untapped resource in supporting and advocating for their siblings. At the same time many of these siblings that are playing large roles in the lives of their brothers or sisters with disabilities also would benefit from recognition and support for these roles. Generally siblings are the most long-lasting relationships, as siblings often grow up in the same households and outlive their parents...

Self-Advocates’ Briefing to Oireachtas Members on International Day of Persons with Disabilities

‘Break barriers, open doors—for an inclusive society for all.’ That was the theme of the UN International Day of Persons with Disabilities on 3 December 2013. Members of the self-advocates’ sub-committee of the Board of Inclusion Ireland marked the important day by briefing Oireachtas members, before a formal meeting the following day with Kathleen Lynch TD, Minister of State with responsibility for disability issues. Brendan O’Connor, Deputy Editor of the Sunday Independent, chaired the briefing...

ACTIVITY AUGUST

Nothing is more important to the development of the child with autism (ASD) than a strong family and an extended circle of support from siblings, relatives, neighbours and friends. While specific teaching, therapies and interventions impact on positive personal development, there will be no greater influence on the progress of a child with autism than to be absorbed into the everyday life of the family and community. This was borne out in summer 2013 by the introduction of the successful pilot project ‘Activity August’...

News from Inclusion Ireland

No changes to social welfare entitlements for people with a disability or carers were announced in Budget 2014. Budget 2014 was announced by Ministers Michael Noonan and Brendan Howlin on 15 October. In advance of the Budget, Inclusion Ireland made a strong case that people with a disability and their families have been hit hard with cuts from every government department in recent years...

PARTNERS IN CHANGE: INCLUSION IRELAND’S WORK WITH FAMILIES

At present we find ourselves in an environment of fundamental change in how people experience disability services. Over the next number of years people are to move from institutions to homes in the community. The implementation of the New Directions report will radically change day services from centre-based provision to inclusive, community-based services. There is also change in how health therapy services will be delivered to children...

ST CHRISTOPHER’S SERVICES ART PROGRAMME

St Christopher’s Services Art Programme has been awarded first prize in the IPB Pride of Place Award for 2013. Pride of Place is an all-island competition that acknowledges the work that communities are doing all over Ireland. The competition focus is about people coming together to shape, change and improve daily lives in their communities...