Friday, April 28, 2017
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Frontline Issue 96
frontline 96

Articles

Gordon Jeyes, Chief Executive, Tusla, explains the new dedicated state agency responsible for improving wellbeing and outcomes for children

They say that the road’s never easy to a place worth going! Establishing a brand new Agency and championing reform at a time of financial restraint and recruitment restriction has been challenging. Finally, on 1 January, 2014, the Child and Family Agency became an independent legal entity, comprising the former Children & Family Services of the HSE, the Family Support Agency and the National Educational Welfare Board, as well as a range of services responding to domestic, sexual and gender-based violence...

Published by Jessica Kingsley Publishers. Reviewed by Darshini Ramasubbu

Caged in chaos is an insightful, articulate account of a teenage girl named Victoria and the effect of dyspraxia on her life. The book was the winner of the 2005 NASEN/TES Special Educational Needs Children’s Book Award. Whilst factually informative, the humorous and engaging style of the author makes this book both an interesting and funny read for anyone wanting to learn from a first-hand perspective how the developmental disorder can cause ‘chaos,’ particularly during adolescence...

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Dr Jane Tracy, Centre for Developmental Disability Health, Victoria, Australia, says that many people with intellectual disabilities often encounter barriers to accessing healthcare services

Being healthy is more than not being sick. Being healthy is about feeling well and comfortable, safe and secure, to be able to connect with other people and join in the life of your community. Being healthy is about feeling good physically and mentally. For people with intellectual and other disabilities it is very important to be and stay as healthy as possible, as being unwell makes it harder to do things for yourself, and to join in education, work, recreation and social activities with family and friends. Many people with intellectual disabilities experience poor health. Some of the health issues relate to the disability, but many are the same as those experienced by the general population.

Published by Jessica Kingsley Publishers. Reviewed by Sandra Rosieur, Counsellor, London

This book explores the personal and interpersonal complexities taking place within the therapeutic community, together with destructive processes that have external origins (such as governmental and health-care commissioning). These ‘attacks’ take place under the guise of policy changes, uncertainties around funding and commissioning, service cuts and, in some cases, they result in the closure of iconic services, such as the Henderson Hospital...

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by Jason Carragher

Hi, my name is Jason Carragher. I am 17 yrs old and I go to St Paul’s Special School in Beaumont Woods. I started when I was 6 yrs old and I have had a lot of problems with behaviour and also with my weight. I have always battled with my weight since I was a young child. At one stage I was 16 stone and was not healthy. I ate all the wrong foods and didn’t exercise a lot, but at the time I didn’t understand why my weight was an issue because I didn’t have the same thoughts as a normal child would have...

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Anne Maher on the benefits of a probiotic diet.

The term ‘probiotic’ has become a familiar one in recent years. However, it is not such a new concept and indeed in the early 1900s, Ilya Mechnikov was the first to propose the use of live microorganisms in maintaining bowel health and prolonging life. Now, the term probiotic is used to describe dietary microorganisms that are beneficial to the health of the host. It is not unusual now to be encouraged to take a course of probiotics along with or soon after a course of antibiotics...

Aisling Lennon and Kathy O’Grady say when parenting a child with intellectual disabilities or supporting an aging spouse, it is important that caregivers take the time to consider how they care for themselves.

On 2 July 2014, the Carers Association launched their Pre-budget Submission 2015, estimating that 187,000 people are providing care in the home in Ireland. Caring activities range from providing occasional assistance, to providing full-time care for an individual, be they a child or an adult. Caring can include supporting an individual with their physical care, assisting with the management of symptoms, and assisting with activities of daily living. Caring also involves providing emotional support for the individual...

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Dr Evan Yacoub, Consultant Psychiatrist, Brothers of Charity Galway, says that respite can take a number of different forms and it is important that services can deliver it in a flexible way.

This article outlines the daily challenges faced by families in caring for those with learning disabilities, and the corresponding need for respite services to...

Joe Wolfe explains that services need to focus more on the health and well-being of those with an ID

People with an intellectual disability are, in general, more likely to have poor health than their non-disabled peers (National Disability Authority 2011). This is recognised internationally and has received much attention over time. While there is an argument that sometimes this poorer health is related to the person’s disability, this is not exclusively the case. Indeed, there is growing evidence that the poorer health is often associated with, and influenced by, health inequality for people with intellectual disabilities...

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Andrew Wormald writes that moving older people with an intellectual disability away from congregated settings into dispersed community living can contribute to their loneliness.

The Causal Pathways as described by Hawkley and Cacioppo (2007) that through loneliness lead to decreased physiological resilience.

After spending a lifetime living in closed institutions older people with an intellectual disability are now being moved away from congregated settings into dispersed community living. For many this is indeed a very positive move, however concerns have also been raised about potential unintended negative impact on health and mortality at least for some (Kozma, Mansa & Beadle-Brown), 2009) Like immigrants in a new country some will reap the rewards and some will struggle to adjust. According to the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) around 50% of respondents experienced some degree of loneliness and 15% reported that they felt lonely most of the time...