Inclusion Ireland and Down Syndrome Ireland hosted a seminar on ‘Personal Budgets’ at the Gibson Hotel in Dublin, on the morning of 30 May 2016. The conference room was bulging with people with disabilities and family members who were anxious to hear about new/better ways to access the supports they need and want in order to achieve greater choice and independence.
HIQA have published a new guide called Supporting people’s autonomy: a guidance document, and also a separate explanatory leaflet called My Choices: My Autonomy. The reason for putting this guide together was to help support people who use services to make their own choices and decisions about their lives.
Ireland’s independent health safety, quality and accountability regulatory body, The Health Information & Quality Authority (HIQA) published the National Standards for Residential Services for Children and Adults with Disabilities in 2013. Within these standards, the need for appropriate end-of-life care for adults with Intellectual Disability (ID) was highlighted.
In December last I watched RTE’s Primetime Investigates on Áras Attracta, Bungalow 3. Knowing in advance that the footage would be bad, I debated with myself whether I should make myself watch it or not. The main reason for my unease is that my seventeen year old sister Cliona has profound ID as well as an extreme epilepsy syndrome that no seizure drug has ever been able to influence.
Registered Intellectual Disability Nurses (RNID’s) are unique, being the only group of professionals who are educated solely to work with people with an intellectual disability (ID) (Northway et al 2006). This specialised education is only available in Ireland and the UK. RNIDs work in a wide range of settings, and have a diversity of roles and skills (one of which is care planning)
A features writer for 16 years, Kate Butler has written for a number of Irish titles, but mostly for the Sunday Times. She is also a practising barrister and board member of Inclusion Ireland.
People with disabilities should be given the opportunity to live as full a life as possible and to live with their families, and as part of their communities, for as long as possible. Every person who uses our disability services and our services for older people, is entitled to expect and receive supports of the highest standard and to live in an atmosphere of safety and care.
Support services for people with disabilities have focused a significant amount of time, energy, and resources, over the past 16 months adjusting to a regulatory environment. The Health Information & Quality Authority (HIQA) has been inspecting services for people with disabilities since November 2013. All agencies must be registered within a three-year timeframe that commenced in 2013...
Has Regulation of Residential Settings Improved The Standards and Quality of Life of People with Disabilities? A provisional view
The Health Information and Quality Authority (HIQA) is the statutory authority with responsibility for registering and inspecting residential services for people with disabilities in Ireland. The regulations for residential services were enacted in 2013. Inspections have commenced with a number of services having undergone registration inspections, while some have had monitoring inspections and others have undergone both types of inspection...
Like many parents from the intellectual disability area, I welcomed the coming of HIQA. I thought it would provide useful oversight of services, safeguard people’s rights and provide an independent arbiter for complaints. What I didn’t foresee was another blanket of bureaucracy...