Sunday, August 20, 2017

Sarah Corcoran has recently secured satisfactory accommodation for her brother John now life has changed for them, but only after a worrying and protracted succession of meetings, applications and representations. She details this frustrating process for Frontline Ireland…

Our story begins in June 2012. At the time, I was 25 years old and my brother John was 22 years old. We lost our mother three years previously and now we had just lost our father. Our father’s death was sudden and we were completely unprepared. My brother John has an intellectual disability and had been living in the family home with my father as his carer.

Frontline contributors illustrate the difficulties associated with independent living for people who live with intellectual disability.

I feel like I would be better off outside of the area. I don’t feel safe in the area because there are some dangerous people there. There were threats being made, and the guards investigated and they asked if there were more threats afterwards. Two weeks later there were more threats made towards me. I said to the social worker “if you can get me out of the area I would be prepared to move anywhere”.

Emma Dunne, whose daughter has autism, says that respite is not a luxury, it’s a necessity.

As a parent cuddling my new baby, ‘respite’ was never a term or an idea that entered my head. To be honest, I had no real understanding of what that term entailed or would later come to mean in my daughter’s life, and mine. When Tess was born, I dreamed of my daughter growing up and all the typical girly adventures she would have and how nice it was that she had a sister to share all these moments with—school, boyfriends, weddings, babies—the list in my head was endless. Then, two and a half years later, without welcome or warning, came the diagnosis of autism.

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by Siobhán Kane, Communications & Information Manager, Inclusion Ireland

Respite is not an additional service that can be seen as an ‘add.on’ or a luxury for people with a disability and their families...

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With the support of respite care, families can be given a break from their daily care and the family member with a disability can experience broader social contacts writes Emma Foley, RNMH, Respite Care Services, Stewarts Hospital Services

Introduction Respite care has been defined as a family support that provides temporary relief from the rigorous physical and emotional demands involved in caring for...

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Respite care--at last becoming more available--is a complex service to organise. Máiríde Woods presents her wish list.

It seems that respite care is throwing off its Cinderella rags at last and becoming a real service; there’s a lot more money around...